That this House celebrates World Sickle Cell Day on 19 June 2012; notes that sickle cell disease is the most common genetic disease in England; further notes the employment issues facing patients living with sickle cell disease, including the link between education and employment, the importance of employer flexibility and the lack of Government attention on these issues, which falls between the remits of health and employment agencies; further notes the comparative lack of research into haemoglobinopathies compared to other disease areas; urges the Government to support greater research into haemoglobinopathies; further notes the importance of effective transition care for patients moving from paediatric to adult services; and calls on the Government to continue to support the work of the voluntary sector in improving awareness of sickle cell disease within the communities affected in schools and amongst the wider public.
Parliamentary Early Day Motion: http://www.edms.org.uk/2012-13/205.htm
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